Pandemic related mental health

OnTrackNY is a nationally recognized Coordinated Specialty Care model disseminated across New York state for young people experiencing early non-affective psychosis. OnTrackNY is a network of 22 teams located in licensed outpatient clinics, serving over 2500 individuals. OnTrackNY offers medication management, case management, individual and group cognitive behaviourally oriented therapy, family support and psychoeducation, supported employment and education, and peer support services. Teams receive training for implementation through an intermediary organization called OnTrack Central. OnTrackNY was selected as a regional hub of the National Institute of Mental Health Early Psychosis Intervention Network (EPINET), a national learning healthcare system (LHS) for young adults with early psychosis. This symposium will present the different ways in which EPINET OnTrackNY implemented systematic communitybased participatory processes to ensure robust stakeholder involvement to improve the quality of OnTrackNY care. Florence will present results of an assessment of stakeholder feedback experiences used to develop strategies for assertive outreach and engagement of program participants, families and providers. Bello will present on mechanisms for integrating of co-creation principles to design, develop and execute quality improvement projects in EPINET OnTrackNY. Stefancic will present on quality improvement projects that used rapid cycle qualitative methods, tools, and strategies to build team capacity and flexibility to respond to an LHS. Montague will present adaptations to OnTrackNY services during the COVID-19 pandemic using an implementation science framework. Finally, Patel will lead a discussion on the implications of involving individuals with lived experiences in all phases of the process to maximize learning in an LHS.

Perceptions of Academic Resilience by Senior Phase Learners and Teachers from Low Socioeconomic Schools

This article reports on the perceptions of academic resilience of Grade 8 and Grade 9 learners and their teachers in low socioeconomic township schools. Learners from township schools experience many risk factors that can impede their academic success and careers. A lack of resources is one of the risk factors experienced by the learners. During COVID-19, where an online or hybrid learning model was relied on for teaching and learning, most township schools relied on the rotational learning model instead. The study's main aim is to evaluate and understand the learners' perceptions of their academic strengths, future aspirations and motivation, and to compare their perceptions with those that emerged from their teachers' blind evaluations. The participants were teachers (n = 8) and learners (n = 12) from two purposively sampled township secondary schools. Data-generation instruments included semi-structured interviews for learners and a self-constructed Likert-type-scale questionnaire for teachers. Content analysis was used to analyse the data. The findings suggest that risk factors to academic resilience exist within the family and the school environment. Lack of parental support and school security, poor teacher-learner relationship and unemployment were frequently mentioned. However, factors that can enhance academic resilience were also identified within the family, school and community. Risks and protective factors affecting learners' immediate threats and needs were identified. Access to technology and the need for technological advances were not identified as resources or risks. Future research should examine the relationship between resilience, academic resilience, career aspirations and the role of technology in education. © 2023, OpenED Network. All rights reserved.

The 'Life after ICU' mobile application- a process in creating an accessible patient-centred platform for Intensive Care rehabilitation resources

Introduction: InS:PIRE (Intensive Care Syndrome: Promoting Independence and REcovery) is a multidisciplinary programme whose role is to assist patients in the identification of, and subsequent rehabilitation from the sequelae of an admission to the Intensive Care Unit (ICU). In NHS Aryshire and Arran (NHSAA) InS:PIRE has traditionally consisted of in-person rehabilitation and support meetings to help manage common post-ICU issues. COVID-19 forced all InS:PIRE activities online, and has required services to redesign their delivery of supporting resources to be readily accessible remotely. Thus, the 'Life after ICU' app was created. Objective(s): The role of this application was to help better-provide accessible information to former ICU patients and their relatives, as well as, improve connectivity between medical professionals and patients. Method(s): The app platform was developed by Piota. Resources were chosen for inclusion through surveying InS:PIRE attendees, who identified their main areas of concern. These areas included: physical problems, emotional issues, social issues, family support, COVID specific support, and physiotherapy. The multidisciplinary InS:PIRE team co-ordinated the identification and collation of the appropriate resources. Additionally, the app serves as a platform for InS:PIRE to disseminate information about the on-going programmes as well as allowing attendees to contact the InS:PIRE team. Result(s): A trial version of the 'Life After ICU' app has now been launched. This app will allow patients and their families to readily access the resources they require. Following a trial period, feedback from app users will be collected and further adaptations made. Conclusion(s): Launching the app recognises the wider view of the importance of eHealth, and its role in modernising service-delivery. Indeed, the Scottish National Clinical Strategy recognises this as an area for future development. The efficacy of eHealth interventions for rehabilitation have been acknowledged,1-2 and thus translating them to the ICU context can be considered as a means of improving the holistic rehabilitation of this complex patient group. Furthermore, through providing services easily accessible by patients, this app allows InS:PIRE to realise NHSAA's 'Caring for Ayshire' strategy, whose aim is to provide care closer to home.

Early childhood intervention in and after the pandemic - study results from Brandenburg.

The CoViD-19 pandemic led to significant changes in 2020 and 2021 and in some cases to considerable burdens for families, some of which are still having an impact. Service provision in form of family support services, such as the early childhood intervention networks, has also been affected by the pandemic and the measures that have been taken. This has influenced and changed the way the networks work and operate, revealing not only numerous risks but also potential. Copyright © 2023 Walter de Gruyter GmbH, Berlin/Boston 2023.

SOCIOEMOTIONAL ASPECTS OF THE TEACHER IN THE FACE OF COVID-19

The objective of this research was to analyze the relationship between levels of emotional intelligence and family support in a sample of teachers linking variables of teaching, age and sex. We worked with an incidental sample made up of 249 teachers of different educational levels under a non-experimental, cross-sectional and correlational design. For data collection, the TMMS-24 and family APGAR instruments were used. The results indicate adequate levels of clarity and emotional repair in the teachers, as well as normal levels of family support. Regarding the relationship between both constructs, there is a direct and medium-strength association between the clarity and repair factors and family support, indicating that when the perception of support from the family nucleus increases, there is greater emotional intelligence. Regarding the variables age and sex, no significant associations were found. It is concluded that teachers who have family support networks have greater ability to identify, understand and regulate their emotions, as well as develop coping strategies in school and non-school contexts. © 2023, University of Cienfuegos, Carlos Rafael Rodriguez. All rights reserved.

The Unintended Consequences of COVID-19 Economic Responses on First Home Buyers? Evidence from New South Wales, Australia

As in many other nations, the Australian Government implemented monetary and fiscal policies in response to the COVID-19 pandemic to aid economic recovery. Among these policies were specific measures to assist first home buyers (FHBs) in entering the housing market. However, these unprecedented economic policies might have other direct and indirect implications on FHBs, which have yet to be thoroughly explored in the literature. To fill this gap, through a survey, we collected information via public and online mortgage broker platforms from 61 FHBs who successfully entered the housing market or were actively searching during the pandemic. The results found COVID-19 economic responses counterproductive for FHBs, pushing them to a more disadvantaged position due to an overheated property market. In addition, since the onset of the pandemic, property prices have risen significantly, exacerbating housing inequality as FHBs increasingly rely on intergenerational family support, take on more financial risk, and relocate to regional areas due to fear of missing out. The study highlights the need for macroeconomists and housing policymakers to consider these unintended consequences in formulating policies that minimise the adverse effects of economic stimulus measures.

Status quo and influencing factors of post-traumatic stress disorder among front-line anti-epidemic medical staff

[Background] Front-line medical staff are an important group in fighting against Coronavirus Disease 2019 (COVID-19), and their mental health should not be ignored. [Objective] This study investigates the current situation and influencing factors of post-traumatic stress disorder (PTSD) among front-line anti-epidemic medical staff during COVID-19 epidemic. [Methods] Medical staff who had participated in fighting against the COVID-19 epidemic wereselected from three grade III Class A hospitals and four grade II Class A hospitals in a city of Hubei Province by convenient sampling method in May 2020. The survey was conducted online using the Post-traumatic Stress Checklist-Civilian Version (PCL-C) as the main survey tool to investigate current situation and characteristics of PTSD among these participants. A total of 1120 questionnaires were collected, of which 1071 were valid, and the effective rate was 95.6%. [Results] Of the 1071 participants, the average age was (32.59+/-5.21) years;the ratio of male to female was 1: 5.02;the ratio of doctor to nurse was 1:5.8;nearly 70% participants came from grade III Class A hospitals;married participants accounted for 75.4%;most of them held a bachelor degree or above (86.5%);members of the Communist Party of China (CPC) accounted for 22.9%;50.9% had junior titles;the working years were mainly 5-10 years (42.8%);more than 80.0% participants volunteered to join the front-line fight;95.1% participants received family support;43.0% participated in rescue missions;78.1% participants fought the epidemic in their own hospitals;more than 60% participants considered the workload was greater than before;34.4% participants fought in the front-line for 2-4 weeks, and 23.5% participants did for more than 6 weeks. There were 111 cases of positive PTSD syndromes (PCL-C total score >=38) with an overall positive rate of 10.4%, and the scores of reexperience [1.40 (1.00, 1.80)] and hypervigilance [1.40 (1.00, 2.00)] were higher than the score of avoidance [1.14 (1.00, 2.57)]. The results of univariate analysis revealed that PTSD occurred differently among participants grouped by age, political affiliation, working years, anti-epidemic activities location, accumulated working hours in fighting against COVID-19, having child parenting duty, voluntariness, family support, whether family members participated in front-line activities, and rescue mission assignment (P<0.05). The results of logistic regression analysis showed that the incidence rates of reporting PTSD syndromes in medical personnel aged 31-40 years (OR=0.346, 95%CI: 0.164-0.730) and aged 41 years and above (OR=0.513, 95%CI: 0.319-0.823) were lower than that in those aged 20-30 years;the incidence rates of reporting PTSD syndromes in medical staff who were CPC members (OR=0.499, 95%CI: 0.274-0.909), volunteered to participate (OR=0.584, 95%CI: 0.360-0.945), and received family support (OR=0.453, 95%CI: 0.222-0.921) were lower than those did not (P<0.05);the incidence rates of reporting PTSD syndromes among medical workers who had child parenting duty (OR=2.372, 95%CI: 1.392-4.042), whose family members participated in front-line activities (OR=1.709, 95%CI: 1.135-2.575), and who participated in rescue missions (OR=1.705, 95%CI: 1.133-2.565) were higher than those who did not (P<0.05). [Conclusion] The positive PTSD syndrome rate is 10.4% in the front-line anti-epidemic medical staff. Age, political affiliation, voluntariness, family support, having child parenting duty, with a family members participating in the fight, and rescue mission assignment are the influencing factors of PTSD.Copyright © 2021, Shanghai Municipal Center for Disease Control and Prevention. All rights reserved.

Anxiety, insomnia and family support in nurses, two years after the onset of the pandemic crisis.

Introduction: The Covid-19 pandemic continues to cause serious physical and mental problems for health professionals, particularly nurses. Aim: To estimate the prevalence of anxiety and insomnia and to evaluate their possible association with family support received by nurses two years after the onset of the pandemic. Materials and methods: In total, the study participants were 404 nurses (335 females and 69 males) with a mean age of 42.88 (SD = 10.9) years and a mean of 17.96 (SD = 12) years working as nurses. Nurses from five tertiary hospitals in Athens constituted the study population who completed the questionnaires State-Trait Anxiety Inventory (STAI), Athens Insomnia Scale (AIS) and Family Support Scale (FSS), in the months of November and December 2021. Regarding demographic and occupational characteristics, gender, age and years of experience as nurses were recorded. Results: 60.1% of the nurses showed abnormal scores in state anxiety, with 46.8% in trait anxiety, and 61.4% showed insomnia. Women showed higher scores on the two subscales of anxiety and the insomnia scale compared to men (p < 0.01 and p < 0.05 respectively), while they showed a lower score on the FSS without statistical significance (p > 0.05). Positive correlations (p < 0.01) were found between the State Anxiety Inventory, Trait Anxiety Inventory and AIS, while all of them showed a high negative correlation with FSS (p < 0.01). Age showed a negative correlation with Trait Anxiety Inventory (p < 0.05). As shown by the mediation analysis, the relationship between state anxiety and insomnia was mediated by trait anxiety, whereas state anxiety appeared to be dependent on family support. Conclusions: Nurses continue to experience high levels of anxiety and insomnia and feel less supported by their families than in the first year of the pandemic. Insomnia appears to be dependent on state anxiety, with a significant indirect effect of trait anxiety, while family support seems to affect state anxiety.

[Strengths and Difficulties of 3- to 15-Year-Old Children and Adolescents in the Second andThird Year of the Corona Pandemic - Results of a Household-Representative Survey in Germany]. / Stärken und Probleme von 3- bis 15-jährigen Kindern und Jugendlichen im zweiten und dritten Jahr der Corona- Pandemie ­ eine haushaltsrepräsentative Befragung.

Behavioural strengths and psychosocial problems in children and adolescents between the ages of 3 and 15 are reported. The survey is based on a household-representative sample of 2,421 parents or guardians providing information on their everyday family-life in summer 2021 by online-questionnaire. 704 of the respondents participated again in the spring of 2022. In result, the behaviour of a quarter of the children and adolescents is described as psychosocially borderline/abnormal over the survey period (SDQ total). About a third of children and adolescents have emotional problems, behavioural problems or problems with their peers (respective SDQ-subscales). The proportion of primary-school children with emotional problems increases from summer 2021 to the following spring. Families in which children with disabilities live are disproportionally more affected. The results are discussed with regard to the SDQ standard values available for Germany, as well as the families' self-reported supportneeds and their planned use of professional support-services. Given the psychosocial burden of children, adolescents and their families presented here, which become apparent well after the closures of day-care centres and schools, or other contact-restricting measures to contain the pandemic, have ended, it remains of interest to observe how their well-being will further develop over time.

Integrating Bioethics and Neonatal Palliative Care in a Pandemic: The Scope of Advocacy and Online Collaboration for Exceptional Life-Sustaining Medical and Surgical Interventions in a Regional Neonatal Intensive Care Unit

Purpose of Study: The regional NICU is an essential healthcare resource for families of newborns with serious life-threatening illnesses. Mechanical ventilation, cardiovascular therapies, therapeutic hypothermia, and neonatal surgeries are common life-sustaining interventions. Our NICU serves an underprivileged population in a resource poor environment and several ethical questions frequently emerge when facing extremes of innovative therapies. The pandemic and rapidly changing institutional protocols accentuated challenges faced by frontline NICU teams caring for newborns at risk for devastating illnesses and death. Concurrently, evolving paradigms in neonatal ethics required urgent and high quality palliative care in a background of racial and socioeconomic inequities, restrictive visitation policies, and limited healthcare resources. The purpose of this study was to ensure that neonates and their families receive ethically sound care, timely referrals for innovative therapies, and specialized palliative care in the strained and uncertain environment of the COVID-19 pandemic. Methods Used: The key steps consisted of structured and impromptu discussion forums for specialized palliative care and medical ethics, perinatal case conferences and pediatrics grand rounds on virtual platforms, educational webinars for interdisciplinary teams, and improved electronic communication. Online collaboration and innovative combinations of in-person and virtual meetings were utilized for urgently Incorporating clinical updates. Summary of Results: 1. A neonate with severe HIE and postnatally diagnosed congenital diaphragmatic hernia required emergent ECMO center referral. NICU providers utilized a structured bioethics and palliative care framework for providing family support and discussing the prognostication challenges of acute illnesses. 2. Many important bioethical questions emerged while caring for infants with life-threatening chromosomal abnormalities. Ethical tension was addressed by teaching tools, quality of life and pediatrics ethics conversations, mitigation of moral distress, contemporary clinical and surgical experience, community engagement, and family perspectives. 3. Ethical conflicts are central in the decision to resuscitate neonates born between 22 and 23 weeks of gestation. To provide urgent prenatal consultations and attend high risk deliveries, we collaborated across geographically distant healthcare systems, unified management strategies and analyzed outcomes data. 4. NEC in several extremely preterm babies had devastating outcomes and the team respected each family's voice with compassionate, shared decision-making for both curative care surgeries and palliative care. Conclusion(s): The new workflows, telephone and video conferences, and redirection to telehealth based family meetings did not change important outcomes during the pandemic. Advocacy and education for integrating bioethics and palliative care were vital facets of neonatal critical care in a resource poor and ever-changing pandemic environment.

Volunteer community service providers during the COVID‐19 crisis response in China: What are their personal needs and how to respond?

The needs of volunteer community service providers (VCSPs), who are the main responders to community crises, have received significantly less attention for the contributions they have been making during the COVID‐19 crisis. A mixed‐method research framework was used in this study, which involved semi‐structured interviews with 13 NGOs and questionnaire responses from 430 VCSPs in Hubei, China to assess the VCSPs' personal needs based on Maslow's hierarchy of needs. It was found that the VCSPs had safety, love, belonging, self‐esteem, and self‐actualization personal needs, all of which were closely related to family, partners, organizations, society and the government. The discussions revealed that the more experienced VCSPs needed special attention and family support was extremely significant for VCSPs in crisis. Several recommendations to meet VCSPs' personal needs are proposed that could have valuable reference value for emergency managers when organizing and supporting VCSPs in contingencies. [ FROM AUTHOR] Copyright of Journal of Contingencies & Crisis Management is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full . (Copyright applies to all s.)

Work-family conflict, entrepreneurial regret, and entrepreneurial outcomes during the COVID-19 pandemic

This study aims to propose a clarification on how female entrepreneurs cognitively process their work-family conflict (WFC) experiences during the novel coronavirus disease (COVID-19) pandemic, with implications related to their attitudes toward their current entrepreneurial activities. It does so by using social cognitive theory as an overarching theoretical perspective. Our hypothesis sheds light on regretful thinking (also known as entrepreneurial regret) as a cognitive mechanism that elucidates how WFC may affect female entrepreneurs' outcomes, such as exit intention and work satisfaction. We further proposed family support as a boundary condition that may help female entrepreneurs to better respond to WFC. We develop and administer a questionnaire survey and analyze data from 346 female entrepreneurs in Japan. The results of our analysis, which is performed using the bootstrapping method to clarify the significance of the moderated mediation mechanism, support our hypotheses. Our results demonstrate that WFC leads to higher exit intention and lower work satisfaction through entrepreneurial regret. Notably, these experiences become stronger when WFC is coupled with low family support. Finally, we discuss the important implications of our findings for researchers and practitioners and highlight opportunities for future research.

The Health Hexagon Model: Postulating a holistic lifestyle approach to mental health for times and places of uncertainty

Professional-driven mental health services are often predicated on westernized beliefs of mental health and distress. This presumptuous view results in treatment solutions that are not suitable to (many) non-western contexts because they are neither culturally valid nor practically sufficient. Instead of promoting imported ideas of mental health, we encourage communities, including Hong Kong, from and for where the authors primarily theorize the current thesis, to turn to and strengthen the resources they employed before the medicalization of distress and suffering. Basic foundational elements in one's everyday life, which we present here as the Health Hexagon Model, should be promoted, especially healthy sleep, healthy diet, regular physical activity, closeness with nature, supportive kinships and friendships, and a sense of purpose, meaning, or sacredness. These elements are not novel;the importance of these basic elements has been recognized, distilled, and transmitted generation after generation. We advocate for communities to identify the missing or hampered fundamental elements in their lives and focus on finding methods that would help them adopt a lifestyle conducive to individual and collective health. This call-to-action is particularly timely as the global community fights for its survival against the coronavirus and ponders ways to cope with the seismic changes in lifestyle it has brought.Copyright © 2022 The Authors

PERCEIVED INCOME ADEQUACY, FAMILY SUPPORT, FINANCIAL ANXIETY, AND TAX NON-COMPLIANCE OF INDONESIAN WORKING WOMEN DURING THE COVID-19 PANDEMIC

In high-risk situations like the Covid-19 epidemic, it is believed that perceived income adequacy, family support, financial anxiety, and tax non-compliance have a strong relationship. This study applies the Conservation of Resources (COR) theory in building research models to fill gaps in previous research. According to the COR theory, individuals safeguard the quality and quantity of their financial resources by avoiding threats to their existence, including taxes. Thus, maintaining limited financial resources during the Covid-19 pandemic to meet needs and wants leads to tax avoidance. The cross-sectional data were collected using an online survey and analyzed using the PLS-based SEM technique. Purpo-sive sampling was used to identify 371 Indonesian working women for the study sample. The study's findings confirmed that perceived income adequacy for current needs and wants and perceived family support directly impact financial anxi-ety. However, this study can only demonstrate the direct effect of perceived income adequacy for current wants and tax non-compliance. Financial anxiety has also been proven to mediate the relationship between the three exogenous factors and tax non-compliance. This study can strengthen the concept of COR theory, which has never been used to investigate tax non-compliance behaviour and can be considered by authorities to design tax policies that take gender into account to achieve tax compliance. © 2023 The Author(s).

'Oh sorry, I've muted you!': Issues of connection and connectivity in qualitative (longitudinal) research with young fathers and family support professionals

The COVID-19 crisis has placed unique restrictions on social researchers in terms of how they conduct their research. It has also created opportunities for adaptation and critical reflection on methodological practice. This article considers how the unanticipated use of remote qualitative methods impacted processes of research connection and connectivity in qualitative (longitudinal) research. The reflections are based on fieldwork conducted for a qualitative longitudinal study about the parenting journeys and support needs of young fathers. We elaborate our key strategies and provide worked examples of how the research team modified their methods and responded in the crisis context. First, we consider questions of connection when seeking to (re)establish and retain connections with project stakeholders and marginalised participants through the pivot to remote methods. Second, we reflect on how processes of maintaining participation and interaction were impacted by practical and technological issues associated with the digitally mediated forms of connectivity available. [ FROM AUTHOR] Copyright of International Journal of Social Research Methodology is the property of Routledge and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full . (Copyright applies to all s.)

The Embedment of Palliative Care Services on a Neuro-Surgical Unit (CS359)

Outcomes: 1. A better understanding of the benefits of embedded palliative care into a neuro surgery unit at a large academic hospital 2. An understanding of the financial impact related to embedding a palliative care APC into the neuro surgery unit at a large academic hospital Problem: Palliative care needs of patients admitted to neurology ICUs are often unmet. Patients with palliative care needs identified were more likely to die in an ICU setting or be transferred to the floor with comfort measures only. These patients were noted to have a longer length of stay. Because of the known benefits of palliative care, specifically, with this vulnerable population of patients, there was a desire to increase the palliative care presence on the neuro surgical service. Intervention(s): One APC palliative care position specific to the neuro ICU team was created. Responsibilities included symptom management, family support, medical decision making, managing conflicts over care goals, and disposition planning. Outcome(s): Outcomes included involvement in interdisciplinary rounds, increased donor opportunities, and increased billing by 28% in 2021. There was a 46% increase in palliative care consults from 2020 to 2021 and an increase in percentage of DNR/DNI orders obtained during admission from 2020 to 2021. An increase in deaths during hospitalization with active palliative care consults on comfort care was noted. Statistics were collected specific to mortality, ICU LOS, diagnosis, COVID status, social work involvement, as well as spiritual care involvement. Conclusion(s): Patients are seen earlier in their hospitalization and their medical wishes are now widely known and discussed by all interdisciplinary team members. The need for the involvement of the APC in these cases has only solidified with increased exposure to the palliative care team as consults increase. Patients are benefitting from the quality care being provided that now better aligns with their personal medical goals. Implications for nursing: There are many vulnerable patient populations for whom palliative care could be just as impactful;additional research should be completed to investigate further. Palliative care embedded on an ICU improves collaboration and increases exposure and understanding of the intent of palliative care.Copyright © 2023

Existential Correlates of Psychosocial Service Use Among GBM Caregivers in the COVID-19 Pandemic

Background/Purpose: Patients with Glioblastoma Multiforme (GBM) have complex care needs and poor prognoses, which places their caregivers at risk for existential distress and psychopathology. Many caregivers seek support in coping with this role;the COVID-19 pandemic further exacerbated caregiver distress and the demand for caregiver support services. The purpose of this study was to examine how psychosocial service use and barriers to use relate to existential distress, anxiety, and depression. Method(s): This study was part of a RCT examining Meaning-Centered Psychotherapy among 60 distressed caregivers of patients with GBM. At baseline, caregivers reported use of psychosocial services and barriers to seeking those services. Additionally, participants completed measures of meaning, existential distress, spiritual wellbeing, anxiety, depression, and caregiver burden. We descriptively analyzed use of healthcare services, prevalence and intensity of barriers to seeking support, and investigated their correlations with outcome measures. Result(s): The most common service endorsed was psychotropic medication use, with 29.3% of caregivers reporting using medications to cope, and it was the only service associated with significantly lower personal meaning and spiritual well-being, and higher anxiety. Of the barriers reported, difficulty finding support (46.4% endorsed), lack of time for support (35.1% endorsed), and caregiving responsibilities (33.9% endorsed) were the most common. Caregivers who endorsed difficulty finding support as a barrier had significantly higher levels of anxiety and depressive symptoms, lack of family support, and impact on schedule. Further, caregivers who reported higher perceived intensity of barriers had elevated levels of existential vacuum, anxiety, and depression. Conclusions and Implications: GBM caregivers often rely on psychotropic medication as a stopgap to manage distress, which may worsen existential distress and anxiety, likely because resources like talk therapy and support groups are inaccessible. These results underscore the need for expanded caregiver support services, and how barriers to these services may exacerbate existential distress and discourage caregivers.

The impact of covid-19 lockdown on parents and young people with autism spectrum disorder (asd)

The spread of COVID-19 resulted in restrictive lockdowns. For families supporting young people with autism spectrum disorder (ASD), the service system was stripped away. The aim of this study was to explore the impact of this challenging situation on a group of Australian carers and parents of children and young people with ASD, with an intention to inform policy and practice based on the lived experiences of these families. A survey of parents of children and young people with ASD in Australia returned 117 responses, of which 86 responded to open-ended questions about COVID-19 lockdowns. Twelve parents responded to the invitation to be interviewed. Interview and survey data were analysed thematically. Five themes emerged: accessing support services, receiving support services online, changes in behaviour, higher levels of conflict, and impact on health and relationships. The experience of lockdowns under COVID-19 undermined informal and formal support systems, and had a particularly strong negative impact on the experiences of children with ASD and their families. These findings also provide support for understanding the social model of disability as a mainstay in the lives of children with disabilities and their carers. IMPLICATIONS The social model of disability was dismantled for children and young people and their carers during the COVID crisis. This unacceptable attack on the human rights of disabled people (people with a disability) needs future planning to ensure that it does not occur again. Future crises require more nuanced policy and practice responses that do not close off all child and family supports to children with ASD and their carers. (PsycInfo Database Record (c) 2023 APA, all rights reserved)

Assessing the Satisfaction and Usability of Patient Families in the ICU With the Use of the Telehealth Communication Application myVisit.

BACKGROUND: During the Covid-19 pandemic, there were many restrictions on family meetings, especially on patients' families meeting their dear ones in hospitals. We aimed to evaluate patients' family members' experience using the mobile application myVisit which was developed in KAMC, to connect patients in the ICU to their families and allow them to talk to them securely. METHODOLOGY: We conducted a cross-sectional study with mixed qualitative and quantitative methods, using the technique of thematic analysis for a qualitative approach to assess user satisfaction responses and a quantitative approach to using a validated survey and comparing our findings in both methods to determine existing usability issues and potential improvements. The survey included two sections, closed and open-ended questions, which were distributed online to 63 patient family members. RESULTS: The response rate was 85%, the overall mean score for the first part of the closed questions (advantages of using myVisit telehealth) was 4.32 and for the second part of the scale on the ease of use of the system (advantages of using myVisit telehealth) was 3.52. Three useful topics were generated concerning the open questions, covering 220 codes from the participants' responses. In general, there is a great interest in technology and its ability to improve people's lives, especially in the medical field and cases where things do not go normally, as well as in exceptional circumstances. CONCLUSIONS: The overall evaluation of the myVisit application was positive in terms of the idea and content, as usability of the system is very good at 71%, plus the users' opinions of the myVisit application are that it saves time at 96%, and save money and effort for the patient's family 74%.

Being stressed in the family or married with work? A literature review and clustering of work-family conflict

PurposeWork-family conflict is an important topic which had an evolution, starting from a static definition, where work and family domains were divided, to a more dynamic and complex balance. COVID-19 has influenced society and created a significant distress among families and working activity, and this topic has been characterised by a major interest, considering some old definitions where this balance was considered problematic but not as an enriching opportunity.Design/methodology/approachThe authors used SCOPUS to find all records mentioning work-family conflict, by considering book, article and review, excluding conference paper and considering only records written in English language. After a duplicated and not pertinent record removal, the authors obtained a number of 675 records. The authors considered 437 records from SCOPUS to create a cluster map.FindingsUsing SCOPUS and VOSviewer the authors have clustered 5 different areas, which are regrouped in next clusters considering keywords with most co-occurrence and significancy: Work-life balance and burnout gender cluster job stress and performance social and family support job satisfaction.Research limitations/implicationsCluster map is origined only by SCOPUS database.Originality/valueThis work aims to find a state of art about this topic, creating hypothesis where this problem has been exacerbated by 2020 due to important society modifications created by COVID-19, where recent evolution of work-family balance has been complicated by papers which come back to consider this balance as problematic.